Solving the Puzzle

Solving the Puzzle in Boston

Australia DC talk

Hi everyone

My mum has been to Sydney Australia for last the 48 hours to a short telomere conference.They had top medical specialists from around the world talking about telomeres and DC. There was a couple of doctors from America that I have met there too. Both mum and I were asked to go, but I decided that I would stay this time as I didn’t want to take any more time off work with been to hospital early this year. I said that my mum had to go anyway. She was just going over to Sydney to go to the conference, and then she was asked if she would speak about DC and DC Outreach.

This is the organisation that she is on the board for. The organisations core mission is to provide support to patients and families affected by DC. The outreach support also takes the form of connecting families with expert medical advice. Also DCO aims to put patients in touch with Drs who have familiarity with treatment as well as having online resources on their web page. DCO fosters a sense of community to a geographical diverse population through Facebook, bi-monthly meetings family chats, newsletters and Bi-annual family retreat at Camp Sunshine.


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