About Save a Life. Solve a Mystery. Tony Bayard is one in a million. Actually, one in 4 million. He’s the only person in New Zealand with two very rare medical conditions; Dyskeratosis Congenita and Kartagener’s Syndrome. What does that mean? It means he has a grave blood marrow failure disorder and his internal organs are backwards. This double whammy threatens the life of this promising 23 year old NMIT graduate. It’s already compromised his ability to walk. (Perhaps you saw Tony on his Segway in the NMIT graduation parade.) Tony’s condition is so unusual, his doctors have encouraged him to seek advice and treatment in the United States, at Children’s Hospital Boston – the teaching hospital of Harvard University and the top ranked children’s cancer hospital in the US*. (*US News and World Report) Children from 150 countries go to Boston for services their home countries can’t provide. The hospital sees nearly half a million patients a year. In the 1940s the Children’s Hospital doctors facilitated the first successful remission of leukemia. In the 1950’s they won the Nobel Prize for culturing the polio virus, making a path for the polio vaccine. In the 80’s they identified the gene for Duchene Muscular Dystrophy. Their researchers work on the leading edge of stem cell research, blood disorders, cancer and chromosome abnormalities. And now, they’re willing to help Nelson’s own Tony Bayard. This is where you come in. A team of doctors at Children’s Hospital Boston has volunteered to work on the puzzle of what ails Tony. Pulmonologists, hematologists, oncologists and clinical researchers will come together, at no charge, to assist Kiwi doctors in helping Tony to live a longer life. And in looking at Tony’s case, they hope to find keys that can help the other young people who are afflicted with life-threatening blood disorders. We are friends of the Bayards. We’ve seen their bravery in dealing with the 2011 death of Tony’s younger brother Aaron, also afflicted with DC and Kartagener’s. Our goal is to raise enough money to get the Bayards to Boston and pay living expenses for two weeks. We’re looking to raise $20,000, which will also help cover lab fees. Every dollar helps. Save a Life. Solve a Mystery. We can do it. One Response to About Liz Duke says: Saturday, 3 November 2012 at 3:32 PM hello to the Bayard family…I do hope all goes well for fundraising for Tony’s trip to the States. My heart felt sympathies to you all regarding Aaron’s death. Now living in Canterbury, I have not been in the loop with your news. Lots of love to you all. Kind regards Liz Duke Log in to Reply Leave a Reply Cancel reply You must be logged in to post a comment.